Glen Niles

Fitzherbert Glen Niles is a father of a child with Down Syndrome who with four other parents created the ‘Down Syndrome Family Network’ to advocate for the value, acceptance, and inclusion of people with Down Syndrome, and equip families with the access to resources, support, and information they needed to help their children to live full and active lives. In seven years he has grown the project into a flourishing network, with free quarterly workshops, skills training sessions for the self advocates and presentations to parents and other professional attendees. When his son was born with Down Syndrome he felt isolated and taken aback by most people’s lack of knowledge about the condition and lack of support for families during that initial period of acceptance.